This week Daddy has been a little more alert. The Doctor told us last Friday to cut Daddy's tube feedings in half so we stopped the nighttime feedings. Monday Daddy didn't want to be hooked up at all but we convinced him to be hooked up for a while. He has not had any food/water since Monday evening and has refused to let us give him any. He is also refusing oxygen but seems to be breathing well. We are watching his sugar and giving him coke through the PEG tube to keep it from going too low. He is too weak to stand on his own, but we have been able to still get him to the living room chair when he wants. He spends long periods of time with his eyes closed more so than open but he's not really asleep.
He hasn't lost his sense of humor. Yesterday he insisted that Me, Mom, Debbie & Christy were trying to trick him into having an enema and that we were selling his stuff! Sometimes he thinks he's still in the hospital or somewhere else, like the railroad. Yesterday morning he was asking Debbie if she knew the Engineer that was operating the engine that was behind him. The past two mornings he's wanted Mom to sit in the room with him and read passages from the bible.
Hospice has provided us with books explaining the signs of nearing death and what to watch for and expect. They have been a big help as we now understand why he is doing and saying the things he is.
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